my life story
I was diagnosed with bilateral hearing loss shortly after birth. The loss is mild/moderate in my left ear, and severe/profound in my right ear.
At seven years old, I was diagnosed with an unknown neuromuscular disease that resembles Charcot-Marie-Tooth disease, or CMT. This disease causes slow deterioration of the myelin sheath in my limbs, permanently damaging nerves.
To deal with these two conditions, I wear hearing aids in both ears, and I'm now in a wheelchair.
Education experience
Bachelor of Science, Honors Biochemistry and Data Science
Harriet L. Wilkes Honors College, Florida Atlantic University
(August 2022 – May 2026)
Click to view activities
Delegate, National Model United Nations (NMUN)
Member, Honors College Judicial Board Council
Volunteer, Student Accessibility Services (SAS)
Member, Leon Charney Diplomacy Program
Officer, Disabled Student Union (DSU)
High School Diploma
Bartram Trail High School
(August 2018 – May 2022)
Click to view activities
President, Quill and Scroll Honor Society
President, Technology Club
volunteer experience
State Ambassador of Florida
Muscular Dystrophy Association (Jacksonville)
(2017 – 2019)
Click for details
I volunteered many hours into raising money for neuromuscular disease research and patient care.
I did this by giving speeches at events and being involved with my local community to share my story and spread awareness.
I'm so grateful to say that I raised over $120,000 for the MDA!
Fundraising Volunteer
Muscular Dystrophy Association (National)
(2013 – 2021)
Click for details
Supported and ran MDA Gala, Muscle Walk, Boot Drive, and more private/public events, as well as my own fundraising teams.
Raised roughly $300,000 over seven years to support my disabled peers.
Unfortunately, the pandemic forced these events to pause. I hope to be involved again soon.
some personal fun facts
I'm a blackbelt in Tae Kwon Do.
I was born on July 2, 2004, so I am twenty years old.
I have lived in thirteen different houses during my lifetime.
I love researching new technology and making my own prototypes/solutions.
I have been wearing leg braces since I was eight years old and am now in a wheelchair.
My family has three Australian Shepherd dogs, five goats, five horses, four cats, and a bird!
I saved my mom’s life when I was four years old by spotting skin cancer patterns on her back, which helped ignite my love towards helping others.